To submit your Survivor Story, or update your existing story, please email muriel@finkelsupply.com

There are many long term survivors of Amyloidosis - here are some of their stories:

Name	Type of Amyloidosis	Date of Diagnosis	Treatment
Alt For.	AL	2014	Chemo
Dan Baker	AL	2004	Chemo, SCT, Dex, Thalidomide Complete Remission.
John Ball	AL	2010	Chemo and ASCT
Tim Bass	AL	2002	HDC/SCT 2003 HDC/SCT 2007
Javier Beltran	ATTR	2007	DOMINO LIVER TRANSPLANT 11/2008
Jacqueline Birn	MGUS &AL	May 2003 AL Oct 2006	ASCT 1/5/2007 excellent response: partial remission
Lorraine Brown	AL	March 2008	Valcade
Louis Catania	AL with MM	May 1994	Chemo then SCT/2nd SCT Summer of 2016
Lynette Dager	AL	Aug 2004	Transplant, SCT & Chemo
A (anon)	AL	2008	SCT
Adel Foz	AL	2007	SCT/2008/BUMC/Complete Respnse
Fred (Anonymous)	AL @SMM	2003	SCT(over 70 yrs. old) Melpahlan, Revlimid, Velcade
Brenda Gregory	AL with MM	December 1997	Transplant, SCT & Chemo
Greta(anon)	AL	2002	SCT
Amy Haas	AA -TRAPS	Spring – 2007	Dex/ Remission
Jay Helwig	AL – Cardiac	May 1994	Mel/Pred June 1994 -- SCT Aug 1994- BUMC
Alfred "Bart" Howe	AL with MM	MM-Dec 2001 AL -Dec 2003	Chemo with Revlimid
Fred Jackson	AL with MM	Feb 2005	SCT
John	AL	2012	Chemo
Steve Keller	AL	2004	SCT & Chemo
Penny Kubik	AL	2003	SCT
E.L.K. Hagerstown, Md	ATTR	6/26/2002	not yet active (AMY is dormant)
Paul Langlois	AL	2010	SCT-Heart TX – Velcade, CYBOR-D, Rev, Vel, Dex Carfilzomib , NEOD001 trial/Daratumumab
Vince Liguore	AL	2009	SCT – Chemo – Heart TX
Walt McGuire	AL	June 2006	Rev/Dex –SCT- Organ TX’s
MDL	AL with MM	Dec 2002	Dex prior to SCT
Claire Montour	Familial apoA1	1999	Triple Organ Transplant Heart, Liver, Kidney – May 20, 2008-Mayo/MN
Jack Moore	AL	June 2005	SCT
Joni Pearl	AA
Kay Rowley	AL	FEB 2002	Chemo/Complete Remission
Sandi Sadler	Familial ATTR	Oct 2003	Liver Transplant
Dan Sansbury	AL	March 2010	Rev/Dex – 5 cycles, Velcade-2 cycles- ASCT – 10/2010
Sonya Scarff	AL	Apr 2004	Chemo
Kathy Spaulding	AL	July 2007	Melphalan and SCT
Sam T. (PA, USA)	AL-Pulmonary	2/6/03	Chemo
IRVIN VANDER LEEST	AL	November 2006	Chemo
Kathy Wilson	AL and MM	2003	Chemo off and on..SCT 2013 Complete Response/Dialysis 2016/