Personal Amyloidosis Blogs
Below is a list of Amyloidosis-related Weblogs (blogs) authored by people who have been affected by the disease. If you have an AMY related blog of your own that you'd like included, please submit to Muriel for evaluation.
THE ASG NEITHER ENDORSES OR IS RESPONSIBLE FOR THE CONTENTS OF THE FOLLOWING BUT PROVIDE THEM FOR INFORMATION ONLY
- The Amyloid Adventures
- Amyloid Assassin
- amyloid BlogSpot (SCT journey with Jerry)
- Beating Back AL Amyloidosis by Rachelle Labelle
- Brooke Eby
- Cheryl's Amyloid Adventures
- Cured Of Amy
- Day By Day By Fay
- DR.ZONDER’S AMYLOIDOSIS BLOG
- Fibrinogen Amyloidosis
- The Imperfect Caregiver (If you have a suggestion for a future post on my blog let Bobbi know and she will put it on her to-do list. Bobbi also welcomes Guest bloggers.
- How to Cope With and Survive a Terrible, Incurable, Fatal Disease(PDF)
- I Don't Look Sick by Jim Hill (PDF)
- Josh Lacy's Blog
- A Journey Through A Stem Cell Transplant - Diane M. Sullivan (YouTube video 1 hour)
- Relaxin' in the Amyloid Oasis Kathy from Ohio
- LIFE AFTER STEM CELL TRANSPLANT- YOU BETCHA! (video)
- LOST IN AMYLOIDOSIS – STEVE KELLER
- MarbleRoad’s Blog: Rare Diseases and Disorders; Public Health; and National Service
- THE MIDDLE OF INFINITY - KEVIN ANDERSON
- Muriel and Steve’s Amyloidosis Journey
- My Amyloidosis Story by Elaine Stewart
- My Story of Hereditary Amyloidosis By Rosaline Callaghan
- Paul and Amy's Amyloidosis Blog
- Papa Jim and his fight with AL Amyloidosis
- Refined though the Fire: My Journey with Amyloidosis By Faye Adams
- Rick Harder
- The Schwannoma Experience
- Seeking Shelter in His Refuge (PDF) By Andrea Barshay Williams
- Story of Survival By Paul Langlois
- TOLIVEASPARKLYLIFE
- Tracy's Blog
- Tracy's lecture to her colleagues on AL Amyloidosis (PDF)
- Where Did Mommy's Superpowers Go?
- You Say I Have What? By Dr. Dez (new book available on Amazon)
