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ATTR SURVEY




Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.org


Kansas City

If you would like to talk, please call the ASG at 866-404-7539 toll free in the USA (leave a message if no one is there and you will be called back).

AMYLOIDOSIS SUPPORT GROUP MEETING
Contact Person: Muriel info@AmyloidosisSupport.com
866-404-7539 (Toll-Free)
or Kellie Thomlison mytwosonz@yahoo.com
If you are from, Kansas, Nebraska, MO, Iowa Arkansas, Oklahoma or anywhere else, know you are welcome..
Date: Saturday September 29th, 2018
Time: 8:30 a.m. - 2pm (subject to change)
Location: Kansas Cancer Center,
2650 Shawnee Mission Parkway
Westwood, KS 66205

Westwood Multipurpose Room (Room #307)
It is located on the 3rd floor -follow signs

Comments: Dr. Jeff Zonder from Karmanos will join our local doctors
Notes on previous meetings: Saturday, June 9, 2018 Guest: Wilson Gonsalves MD (Mayo) and local KU Dr.


Saturday August 5, 2017 our guest was Dr. Francis Buadi/Mayo/Rochester


April 1, 2017 our guest was Saulius Girnius MD/University of Cincinnati


August 6, 2016 our Guest was Wilson Gonsalves – Mayo Clinic


April 2, 2016 Saturday our Guest – Jeff Zonder MD- Karmanos Detroit


March 28, 2015 our guest was Nelson Leung - Mayo Clinic Amyloid Nephrologist and Hematologist


September 2014 guest was Jeff Zonder MD


Saturday April 12, 2014 our guest was Dr. Martha Lacy Mayo/Rochester


November 16, 2013 our guest was Suzanne Hayman Mayo/Rochester


April 20, 2013 our guest was Martha Lacy Mayo/Rochester


August 4, 2012 our Guest –Jeffrey Zonder - Karmanos was so educational and helpful.


April 21, 2012 Our guests were Stephen J. Russell MD, PhD- Mayo/Rochester MN and Dianne Mullins of THE HEALING TOUCH.


April 9, 2011 – Our guests were Dr. Robert Kyle of Mayo/Rochester MN and Dr. Suman Kambhampatie


APRIL 10, 2010 OUR Guest was– Dr. Shaji Kumar – Mayo/Rochester


August 8th meeting was a great meeting for bonding and working on strategy. With the help of the animation and Dr. Kyle’s slides we all received further knowledge of the disease and are determined to spread local awareness. Kellie and her family were great to let us use their conference room. We do hope to find a permanent home soon. Many are looking and others offered but we would like some hospital cooperation not to mention a doctor or two.



Support Groups

2018 CALENDAR

**TTR & Familial**

AZ/Southwest (Phoenix)

Carolinas (Charlotte/Durham)

Chicago

Florida (Jacksonville)

Florida (Miami)

Florida (Tampa)

Georgia/Alabama

Indianapolis

Kansas City

Louisiana

Maryland (Baltimore/D.C.)

Maryland (Hagerstown)

Massachusetts (Boston)

Michigan/Ohio

Minnesota/Upper Midwest

Nevada (Las Vegas)

New York City

New York (Rochester)

Ohio/PA

Portland/Seattle

Philadelphia

Rocky Mountains (Denver)

San Diego

Southern California (L.A.)

St. Louis

Texas (Dallas)

Texas (Houston)

Utah


We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.



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