TTR & Familial
Important Clinical Trials
Hot Alnylam News – Expanded Access
EAP – PATISIRAN -hATTR
For Hereditary ATTR Patients
Amyloidosis Support Groups
Florida (Miami) (see Jacksonville and Tampa too)
If you would like to talk, please call
the ASG at 866-404-7539 toll free in
the USA (leave a message if no one is
there and you will be called back).
The non toll free number is 630-350-7539.
|AMYLOIDOSIS SUPPORT GROUP MEETING
866-404-7539 Toll Free – Please Leave a Message
2018 TBA(SEE Jacksonville )
||8:30 - 2pm(flexible end time)
University of Miami Miller School of Medicine
Sylvester Comprehensive Cancer Center
1475 NW 12 Avenue
Sylvester 1301 Conference room
Miami, FL. 33136
Self-parking available (at no charge to the attendees) and is located directly in front of the Sylvester Comprehensive Cancer Center located at
1475 NW 12th Avenue. (No need to validate on Saturdays. The Sylvester valet parking side of the building is normally closed/secured on Saturdays
but security/attendant will be there this Saturday for this specific meeting.)
Conference room (Sylvester 1301) is located on the 1st floor of the twin elevators that are directly across from the valet parking entrance.
GUESTS: TBA(SEE Jacksonville )
|Notes on previous meetings:
February 11, 2017 our guests were Janice Wiesman from BUMC, and James Hoffman from Miami and a rep from Alnylam and Prothena (NEOD. Due to weather Dr. Comenzo could not make the meeting.
2015 guests were Mark Sloan MD– BUMC
and James Hoffman MD- Miami
And the clinical trial rep from Prothena (NEOD001)
Amyloidosis Awareness Pamphlet (PDF)
GUESTS WERE: Robert Kyle Mayo/Rochester, James Hoffman Univ.of Miami and others. We also meet in Jacksonville Florida and Miami too.
FULL 2017 CALENDAR
**TTR & Familial**
Nevada (Las Vegas)
New York City
New York (Rochester)
Rocky Mountains (Denver)
Southern California (L.A.)