TTR & Familial
Important Clinical Trials
Amyloidosis Support Groups
Florida (Miami) (see Jacksonville and Tampa too)
If you would like to talk, please call
the ASG at 866-404-7539 toll free in
the USA (leave a message if no one is
there and you will be called back).
The non toll free number is 630-350-7539.
|AMYLOIDOSIS SUPPORT GROUP MEETING
866-404-7539 Toll Free – Please Leave a Message
Saturday November 16, 2019 (CC in Weston)
||8:30 - 2pm(flexible end time)
NOTE: We now alternate between The University of Miami Miller School of Medicine and Cleveland clinic in Weston Florida
Cleveland Clinic Florida
2950 Cleveland Clinic Blvd
Weston, FL 33331
Dr, Jeff Zonder
joins our local South Florida doctors.
|Notes on previous meetings:
Sunday April 15th, 2018 our guests were Dr. Jonathan Kaufman from Emory and James Hoffman from U of Miami
February 11, 2017 our guests were Janice Wiesman from BUMC, and James Hoffman from Miami and a rep from Alnylam and Prothena (NEOD. Due to weather Dr. Comenzo could not make the meeting.
2015 guests were Mark Sloan MD– BUMC
and James Hoffman MD- Miami
And the clinical trial rep from Prothena (NEOD001)
Amyloidosis Awareness Pamphlet (PDF)
GUESTS WERE: Robert Kyle Mayo/Rochester, James Hoffman Univ.of Miami and others. We also meet in Jacksonville Florida and Miami too.
ATTR Hereditary and Wild Type
Nevada (Las Vegas)
New York City
New York (Rochester)
Rocky Mountains (Denver)
Southern California (L.A.)
We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.