Home Page

Awareness Building

Amyloidosis Info

TTR & Familial

Important Clinical Trials

Upcoming Events

About Us

Contact Us


Treatment Centers

Awareness Items

AMY Blogs

Patient's Day

Survivor Stories

In Memoriam


Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.org

Florida (Miami) (see Jacksonville and Tampa too)

If you would like to talk, please call the ASG at 866-404-7539 toll free in the USA (leave a message if no one is there and you will be called back). The non toll free number is 630-350-7539.

Contact Person: Muriel info@amyloidosissupport.org
866-404-7539 Toll Free Please Leave a Message

Date: Saturday November 16, 2019 (CC in Weston)
Time: 8:30 - 2pm(flexible end time)
Location: NOTE: We now alternate between The University of Miami Miller School of Medicine and Cleveland clinic in Weston Florida

Cleveland Clinic Florida
2950 Cleveland Clinic Blvd
Weston, FL 33331
Comments: GUESTS: Dr, Jeff Zonder joins our local South Florida doctors.
Notes on previous meetings: Sunday April 15th, 2018 our guests were Dr. Jonathan Kaufman from Emory and James Hoffman from U of Miami

February 11, 2017 our guests were Janice Wiesman from BUMC, and James Hoffman from Miami and a rep from Alnylam and Prothena (NEOD. Due to weather Dr. Comenzo could not make the meeting.

2015 guests were Mark Sloan MD BUMC and James Hoffman MD- Miami And the clinical trial rep from Prothena (NEOD001)

Amyloidosis Awareness Pamphlet (PDF) GUESTS WERE: Robert Kyle Mayo/Rochester, James Hoffman Univ.of Miami and others. We also meet in Jacksonville Florida and Miami too.

Support Groups


ATTR Hereditary and Wild Type

Non-ATTR Hereditary

AZ/Southwest (Phoenix)

Carolinas (Charlotte/Durham)


Florida (Jacksonville)

Florida (Miami)

Florida (Tampa)



Kansas City


Maryland (Baltimore/D.C.)

Maryland (Hagerstown)

Massachusetts (Boston)


Minnesota/Upper Midwest

Nevada (Las Vegas)

New York City

New York (Rochester)




Rocky Mountains (Denver)

San Diego

Southern California (L.A.)

St. Louis

Texas (Dallas)

Texas (Houston)



We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.

Order ASG Shirts Here (PDF Form)