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Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.com


If you would like to talk, please call the ASG at 866-404-7539 toll free in the USA (leave a message if no one is there and you will be called back).

Contact Person: Paula Schmitt pschmitt_98@yahoo.com
Muriel info@amyloidosissupport.com
866-404-7539 (Toll-Free)
Date: November 18, 2017
Time: 9am - 2:30
Location: University of North Carolina
Chapel Hill Comprehensive Cancer Center
170 Manning Dr.
Chapel Hill NC 27599
First Floor Conference Room (Follow the Signs)
Comments: Special Guests: Wilson Gonsalves / Mayo and our host doctor, Saad Usmani /Carolinas Health Care
Notes on previous meetings: January 28, 2017 Saturday our guests were : Dr. Francis Buadi from Mayo Rochester and Dr. Sascha Tuchman from UNC

October 2016 our special guests were Drs. Vaishali Sanchorawala from Boston U amyloid clinic and Saad Usmani, MD - Director of Plasma Cell Disorder program and Clinical Research in Hematologic Malignancies. we met at Carolinas Medical Center, 1000 Blythe Blvd, Charlotte, NC 28203

February 20, 2016 our Special Guests were Brendan Weiss, MD - Director, UPenn Amyloidosis Program and Sascha Tuchman MD from Duke. We met at Duke University North Pavilion Building 2400 Pratt Street Room 7015 Durham, NC and Parking was available in the adjacent deck.

November 14, 2015 our guests were Brendan Weiss, MD - Director, UPenn Amyloidosis Program
Saad Usmani, MD - Director of Plasma Cell Disorder program and Clinical Research in Hematologic Malignancies
Manisha Bhutani, MD - Assistant Professor of Medicine UNC Chapel Hill
We met at the Carolinas Medical Center, 1000 Blythe Blvd, Charlotte, NC 28203, in Dining Room #2, which is located directly across from the cafeteria. Parking was available in the garage at the main entrance of the Medical Center for a fee of $3.00.

Saturday February 7 - 2015 our Guests: Dr. Sascha Tuchman along with Dr. Saulius Girnius from the University of Cincinnati. Our scheduled guest has a conflict. We will also have the CSO of Prothena to talk about the new trial with NEDO001

Almost 40 of us got together with Dr. Saad Usmani of the Levine Cancer Institute in Charlotte and Dr. Sascha Tuchman from Duke University Hospital.

Our guest for July was Dr. Robert Kyle – Mayo/Rochester

Guest – Dr. Jeffrey Zonder – Karmanos - Detroit was a great guest in Aug 2008

Our Guest was Dr. David Seldin Boston University Medical Center Director of Amyloid Research Center

We had a representative from the Binding Site to talk about Freelight Chains. And Mrs. Deborah Slappey Pitts and JoAnna & Jeff Cross.

Our May meeting was a great one with 17 happy supported people, and we hope to see at leas 5 more at the next meeting. Remember this meeting is not limited to the Carolina's. If you can make it, you are welcome.

Support Groups


**TTR & Familial**

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