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ATTR SURVEY




Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.org


Amyloidosis Blogs

Below is a list of Amyloidosis-related Weblogs (blogs) authored by people who have been affected by the disease. If you have an AMY related blog of your own that you'd like included, please submit to Muriel for evaluation.

THE ASG NEITHER ENDORSES OR IS RESPONSIBLE FOR THE CONTENTS OF THE FOLLOWING BUT PROVIDE THEM FOR INFORMATION ONLY


  • *For a weekly pearl on nerves and neuropathy, follow @JWiesmanMD on Twitter*

  • The Amyloid Adventures
  • Amyloid Assassin
  • amyloid BlogSpot (SCT journey with Jerry)
  • Beating Back AL Amyloidosis by Rachelle Labelle
  • Brooke Eby
  • Cheryl's Amyloid Adventures
  • Cured Of Amy
  • Day By Day By Fay
  • DR.ZONDER’S AMYLOIDOSIS BLOG
  • Fibrinogen Amyloidosis
  • The Imperfect Caregiver (If you have a suggestion for a future post on my blog let Bobbi know and she will put it on her to-do list. Bobbi also welcomes Guest bloggers.
  • How to Cope With and Survive a Terrible, Incurable, Fatal Disease(PDF)
  • Josh Lacy's Blog
  • A Journey Through A Stem Cell Transplant - Diane M. Sullivan (YouTube video 1 hour)
  • Relaxin' in the Amyloid Oasis Kathy from Ohio
  • LIFE AFTER STEM CELL TRANSPLANT- YOU BETCHA! (video)
  • LOST IN AMYLOIDOSIS – STEVE KELLER
  • MarbleRoad’s Blog: Rare Diseases and Disorders; Public Health; and National Service
  • THE MIDDLE OF INFINITY - KEVIN ANDERSON
  • Muriel and Steve’s Amyloidosis Journey
  • My Amyloidosis Story by Elaine Stewart
  • Paul and Amy's Amyloidosis Blog
  • Papa Jim and his fight with AL Amyloidosis
  • Rick Harder
  • The Schwannoma Experience
  • Seeking Shelter in His Refuge (PDF) By Andrea Barshay Williams
  • TOLIVEASPARKLYLIFE
  • Tracy's Blog
  • Tracy’s lecture to her colleagues on AL Amyloidosis (PDF)
  • Where Did Mommy's Superpowers Go?





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  • Support Groups

    2018 CALENDAR

    **TTR & Familial**

    AZ/Southwest (Phoenix)

    Carolinas (Charlotte/Durham)

    Chicago

    Florida (Jacksonville)

    Florida (Miami)

    Florida (Tampa)

    Georgia/Alabama

    Indianapolis

    Kansas City

    Louisiana

    Maryland (Baltimore/D.C.)

    Maryland (Hagerstown)

    Massachusetts (Boston)

    Michigan/Ohio

    Minnesota/Upper Midwest

    Nevada (Las Vegas)

    New York City

    New York (Rochester)

    Ohio/PA

    Portland/Seattle

    Philadelphia

    Rocky Mountains (Denver)

    San Diego

    Southern California (L.A.)

    St. Louis

    Texas (Dallas)

    Texas (Houston)

    Utah


    We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.



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