I have AA amyloid and have been in the trial since 2002. I see Dr. Merrill Benson at Indiana University Medical Center in Indy.. When I first started on the study, I was really sick. I have been on the transplant list for a kidney since 2003. My creatinine numbers have stabilized to where I am currently on hold on the list...and still not on dialysis. I have no source for my amyloidosis....my body just produces inflammation on its own. Do you know what is causing your amyloid? My husband Patrick is my caregiver and we would be glad to talk with you anytime.