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Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.org


If you would like to talk, please call the ASG at 866-404-7539 toll free in the USA (leave a message if no one is there and you will be called back).

Contact Person: Muriel info@amyloidosissupport.com
866-404-7539 (Toll-Free)

Paula Schmitt: pschmitt_98@yahoo.com
Date: Saturday March 16, 2019
Time: 8:30am - 3pm - Complimentary Breakfast and Lunch Served


Room B050 of the James Cancer Center
460 West 10th Avenue
parking is available in the South Cannon Drive garage that is connected to the building. For detailed driving instructions follow this link: https://maps.google.com/maps?daddr=460+W.+10th+Ave.,+Columbus,+Ohio+43210&output=classic&dg=ntvb

Comments: GUEST: Rick Ruberg MD - Cardiologist from Boston University Amyloid Clinic
Notes on previous meetings: MEETING IN CLEVELAND:

Cleveland Clinic, Taussig Cancer Center
10201 Carnegie Ave.,
Cleveland, OH 44195
Room CA5-120


Room B050 of the James Cancer Center
460 West 10th Avenue
parking is available in the South Cannon Drive garage that is connected to the building. For detailed driving instructions follow this link: https://maps.google.com/maps?daddr=460+W.+10th+Ave.,+Columbus,+Ohio+43210&output=classic&dg=ntvb

August 25th, 2018 Saturday Guest: Jason Valent – Cleveland Clinic

March 10, 2018, we skyped with Wilson Gonsalves MD, Mayo/Rochester and met with clinical trial reps as well.

Our guest Saturday September 9, 2017 was Dr. Jeff Zonder – Karmanos- We met in Cleveland at the Cleveland Clinic

March 11th, 2017 our guest was Frederick Ruberg MD (Cardiologist from Boston University Amyloidosis Clinic)

August 27, 2016 joining our hosts at the Cleveland Clinic was Ron Go MD, Mayo Clinic

March 19, 2016 Saturday at OSU our guest Dr. Frederick Ruberg from Boston’s Amyloid Clinic will join our local doctors for an educational and fun meeting.

Our August 22, 2015 meeting had as a guest Dr. Morie Gertz from the Mayo Clinic in Rochester MN. The meeting was at the Cleveland Clinic which alternates With OSU as our meeting venue host.
Cleveland Clinic, Taussig Cancer Center,
3rd Floor Conference Room
R3-01 and R3-03 210 East 90th Street
Cleveland Ohio 44195
PARK: JJ Parking Garage between Chester and Euclid Ave

Our March 2015 meeting had guest Dr. Angela Dispenzieri

Our November 2014 meeting was the first held at the Cleveland

Our March 2014 gues was Frederick Ruberg MD- Cardiologist- BU
and The Binding Site Debbie Bolt-Houle

SATURDAY OCTOBER 12, 2013 our Guests were Dr. Mazan Hanna of the Cleveland Clinic and Dr. Efebera of OHSU

Saturday March 9, 2013 our Guests was Dr Bhatt, Nephrologist OSUMC, Dr. Kawash, Cardiologist OSUMC, Dr. Efebera, Amyloid Specialist/ Hemo/Onc OSUMC..GREAT MEETING!

Saturday SEPTEMBER 22 – 2012, our Guest was be Dr. Robert Kyle from the Mayo Clinic Rochester MN……..

March 17, 2012 meeting had guest Dr. Yvonne Efebera, OSUMC and Rep. Phil Tanner
Phil Tanner | Executive Director :: The Leukemia & Lymphoma Society | 2225 Citygate Drive, Columbus, Ohio 43219 :: 614-476-7194 x225 | www.lls.org | phil.tanner@lls.org

24 September, 2011 our guest was Dr. Jeffrey Zonder.

The OHIO ASG meeting on Saturday was informative for all of us. Dr. Jeffrey Zonder, Karmanos Institute in Detroit led the group through a series of slides that pertained to the introductions we each gave in the beginning, so was relevant & individualized for all. Many questions were answered by both Dr. Zonder and the lovely intelligent Dr. Yvonne Efebera of the The James OSUMC team. Mike Uscio from the www.LLS.org has not missed one of our meetings - young, handsome with 2 small children, talked to the group about the latest local LLS monies/events. We heard Connie Hornbeck of Akron area about her charity, secure harbor, who drove 2 1/2 hours to join us. Connie & husband Tim, who has cardiac Amyloidosis, run a charity that provides help with housing and money for people who cannot afford going to BUMC.

There is a fundraising event in the Columbus, OH area - http://www.coybl.org/page/show/204992-welcome-to-the-central-ohio-youth-baseball-league- it is basically for MM, but the money goes to our own Don Benson, MD at The James OSUMC. On the web site, there is a video on the right side of Matthew Hare & his father. Matt, at age 27, has MM & Amyloidosis . Matt & his parents have been very active in our Ohio ASG. BTW Matt announced he is getting married and honeymooning in Italy!!! Congrats to Matt and his fiance!!


Muriel Finkel, President

For a meeting in your area go to:
ASG www.amyloidosissupport.com

Contact Toll Free 866-404-7539

National Organization Member of NORD
JOIN: www.amyloidosisonline.com

Over 1000 participating

Sue Smith, Ohio & Michigan ASG Facilitator

Our Guest October 3, 2009 – DR. DON BENSON and a wonderful experience with guided imagery with Psychologist Pat Van Kley and our LLS Rep Mike Uscio

Our Guests in March – DR. DON BENSON AND Dr. Sharla Wells-DiGregorio from the Pain and Palliative Care Service at the James, and our LLS r, Mike Uscio (Central Ohio)

I am very excited to announce that our OHIO meeting was a great success. We had people from WV, PA and Northern & Southern Ohio. One of our guests will have a SCT March 26 and 1 other, who at 26 yrs old, was 6 months out from a SCT. Another had a kidney transplant and many others SCT's. We had first timers and others who were regulars.

Our guest Sharla Wells-DiGregorio, PhD - Pain and Palliative Care Dept of OSUMC was very easy to talk with and a very interesting speaker. She met with the caregivers while Dr. Don Benson met with the patients.

Dr. Benson gave an update on clinical trials at OSU. He is such a personable man & stayed with us till the very end of the meeting. As a matter of fact, 15 or so stayed after we'd adjourned to chat and Dr. Benson stayed also. We couldn't ask for more.

Our Guest Speakers were be The Binding Site (Free Light Chains): Richard M. O'Hara, Jr., Ph.D., Technical Director The Binding Site, Inc.,and . Dr. Don Benson –over 35 happy attendees…

Our first meeting (March 1, 2008) had close to 30 attendees and our guests, Dr. Jeffrey Zonder, Dr. Don Benson, Leukemia and Lymphoma Society Rep Mike Uscio and Muriel and Steve Finkel

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We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.

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