Home Page
Awareness Building
Amyloidosis Info
Amyloidosis Centers
ATTRwt & ATTRv
Important Clinical Trials
Patient Registry
Upcoming Events
Webinars
About Us
Contact Us
Resources
Treatment Centers
Awareness Items
AMY Blogs
Patient's Day
In Memoriam
Donations
Diflunisal Shortage!
Click Here
Were you diagnosed with Cerebral Amyloid Angiopathy (CAA)?
Click Here
|
Amyloidosis Support Groups
We are a phone call or email away! TOLL FREE HELP/HOT LINE: 866-404-7539 OR EMAIL: Info@amyloidosissupport.org |
FROM AKCEA/IONIS
Research study opportunity: Researchers are looking for volunteers who were either diagnosed with ATTR amyloidosis (hereditary or wild-type) or who provide care for a person diagnosed with this condition. The purpose of this study is to learn about how ATTR amyloidosis affects quality of life. We are also interested in the experiences of people who care for persons with ATTR amyloidosis. Participation is completely voluntary and involves taking part in a series of seven online surveys over two years. Participants will be paid for their time. No medical treatment is provided. Please visit the following website to find out if you qualify to participate: |
2023 ATTR CHICAGO MEETING
WEBINARS (Virtual Meetings)
Arizona (Phoenix)
California (Los Angeles)
California (San Diego)
Chicago
Colorado
Detroit
Florida (Jacksonville)
Florida (Miami)
Florida (Tampa)
Georgia/Alabama
Indianapolis
Kansas City
Louisiana
Maryland (Baltimore/D.C.)
Maryland (Hagerstown)
Massachusetts
Minnesota
Nevada
New York City
New York (Rochester)
North Carolina
OSU/Cleveland Clinic
Philadelphia
Portland
St. Louis
South Carolina
Texas (Dallas)
Texas (Houston)
Utah
Virginia
Washington (Seattle)
Washington (Spokane)
Washington DC
|
We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan. |
