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ATTR SURVEY




Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
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FROM AKCEA/IONIS

Research study opportunity: Researchers are looking for volunteers who were either diagnosed with ATTR amyloidosis (hereditary or wild-type) or who provide care for a person diagnosed with this condition. The purpose of this study is to learn about how ATTR amyloidosis affects quality of life. We are also interested in the experiences of people who care for persons with ATTR amyloidosis. Participation is completely voluntary and involves taking part in a series of seven online surveys over two years. Participants will be paid for their time. No medical treatment is provided. Please visit the following website to find out if you qualify to participate:

https://www.amihealthy.com/custom/Akcea/AkceaATTR/AkceaATTRHome.aspx?SITE=ATTRAMYSUPPORT

Support Groups

2018 CALENDAR

**TTR & Familial**

AZ/Southwest (Phoenix)

Carolinas (Charlotte/Durham)

Chicago

Florida (Jacksonville)

Florida (Miami)

Florida (Tampa)

Georgia/Alabama

Indianapolis

Kansas City

Louisiana

Maryland (Baltimore/D.C.)

Maryland (Hagerstown)

Massachusetts (Boston)

Michigan/Ohio

Minnesota/Upper Midwest

Nevada (Las Vegas)

New York City

New York (Rochester)

Ohio/PA

Portland/Seattle

Philadelphia

Rocky Mountains (Denver)

San Diego

Southern California (L.A.)

St. Louis

Texas (Dallas)

Texas (Houston)

Utah


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