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Amyloidosis Support Groups

We are a phone call or email away!
24/7 TOLL FREE HELP/HOT LINE: 866-404-7539
OR EMAIL: Info@amyloidosissupport.org


FROM AKCEA/IONIS

Research study opportunity: Researchers are looking for volunteers who were either diagnosed with ATTR amyloidosis (hereditary or wild-type) or who provide care for a person diagnosed with this condition. The purpose of this study is to learn about how ATTR amyloidosis affects quality of life. We are also interested in the experiences of people who care for persons with ATTR amyloidosis. Participation is completely voluntary and involves taking part in a series of seven online surveys over two years. Participants will be paid for their time. No medical treatment is provided. Please visit the following website to find out if you qualify to participate:

https://www.amihealthy.com/custom/Akcea/AkceaATTR/AkceaATTRHome.aspx?SITE=ATTRAMYSUPPORT

Support Groups

2019 CALENDAR


ATTR Hereditary and Wild Type

Non-ATTR Hereditary


Arizona (Phoenix)

California (Los Angeles)

California (San Diego)

Carolinas

Chicago

Colorado (Denver)

Detroit

Florida (Jacksonville)

Florida (Miami)

Florida (Tampa)

Georgia/Alabama

Indianapolis

Kansas City

Louisiana

Maryland (Baltimore/D.C.)

Maryland (Hagerstown)

Massachusetts (Boston)

Minnesota

Nevada (Las Vegas)

New York City

New York (Rochester)

Ohio (OSU)

Philadelphia

Portland

St. Louis

Texas (Dallas)

Texas (Houston)

Utah

Virginia

Washington (Seattle)

Washington (Spokane)


We invite our pharmaceutical liaisons to our support group meetings to help in our goal of educating and empowering our patients. The donations and/or grant received from these companies are unconditional, and the ASG does not endorse any one of their products over any other types of amyloidosis treatment. These treatments are mentioned at our meetings, on our website, and other electronic format for educational purposes. We encourage you to consult your amyloidosis professional when choosing a treatment plan.



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